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ABOUT US
ADAP Advocacy is a national 501(c)(3) nonprofit organization incorporated in the District of Columbia to promote and enhance the AIDS Drug Assistance Programs (ADAPs) and improve access to care for persons living with HIV/AIDS. ADAP Advocacy works with advocates, community, health care, government, patients, pharmaceutical companies and other stakeholders to raise awareness, offer patient educational programs, and foster greater community collaboration. Check out our Silver Transparency profile on Guidestar.
The following value statements are the foundational ideals under which ADAP Advocacy operates:
- That the organization consistently strives to achieve them, while encouraging its supporters to do the same.
- That the voice of persons living with HIV/AIDS shall always be at the table and the center of the discussion.
- That HIV/AIDS advocates should welcome the opportunity to join the skills, experience and voices with others on issues of disability and access to adequate healthcare for all Americans.
- That advocacy efforts targeted to our federal government shall always carry the needed messages applicable at the state and local level.
- That messages and information shall be in accessible formats understandable to - and also deliverable by - grassroots advocates in any setting.
Governance
ADAP Advocacy is governed by a dedicated, diverse volunteer board of directors. The organization now benefits from the combined experience of eight HIV-positive members, two ADAP recipients (plus three former ADAP recipients), one pharmacist, two attorneys, three pharmaceutical company representatives, one nurse (retired), and several influential AIDS community activists and leaders.
Learn more about our Board of Directors.
Management & Administration
Prior to filing its Article of Incorporation, ADAP Advocacy was managed by an "Organizing Committee" of seven to nine (7-9) individuals with proven skills in administration, advocacy, fundraising, medicine, and/or ADAP recipient - including Gary Rose (Jersey City, NJ 07302), John D. Kemp, Esq. (Washington, DC 20005), Joyce Turner Keller (Baton Rouge, LA 70814), Keita Simmons (Stuart, FL 34997), Philip A. Haddad, MD (Shreveport, LA 71104), Rani G. Whitfield, MD (Baton Rouge, LA 70809) and William E. Arnold (Washington, DC 20009). This Organizing Committee eventually was seated as the first Board of Directors after the organization was fully established on July 6, 2007.
All management functions are executed by Purple Strategy Group (formerly, The Macsata-Kornegay Group). The Organizing Committee engaged Brandon M. Macsata, Managing Partner of Purple Strategy Group, as the CEO of the organization charged with all facets of its administration, funding, governance, management, marketing, and public policy. Macsata has been living with HIV since 2002.
Disclaimer: ADAP Advocacy has used the federal program's name, the "AIDS Drug Assistance Program (ADAP)" but has no connection to the federal program other than the use of its name, and our purpose to educate individuals about the availability of the federally funded program.